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The Beyond the Genome working group is pleased to announce<span style="margin:0px"> </span><b>Beyond the Genome: ethical aspects of large cohort studies</b>, a one-day symposium at the<span style="margin:0px"> </span><b>University of Antwerp</b><span style="margin:0px"> </span>on<span style="margin:0px"> </span><b>February
3th,</b><span style="margin:0px"> </span><b>2023</b>. </p>
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The symposium will focus on the shift from curative medicine to<span style="margin:0px"> </span><b>preventive and personalized medicine</b>. This requires the collection, storage, and processing of large personal datasets. The new GDPR in the European Union
protects the personal data of European citizens. This has been applied to genomics, yet there are many other different -omics that may or may not contain relevant personal data. With a special focus on<span style="margin:0px"> </span><b>proteomics</b>. The
symposium will focus on raising several important ethical questions and privacy risks based on the ethical, legal, and societal implications (ELSI) framework. This symposium aims to inform scientists and ethicists, as well as people with an interest in privacy
regulations and participatory medicine. </p>
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<b><span lang="en-US" style="margin:0px">Registration is mandatory</span></b><span lang="en-US" style="margin:0px"><span style="margin:0px"> </span>and can be done via the following link:<span style="margin:0px"> </span><a href="https://www.uantwerpen.be/en/conferences/beyond-the-genome/registration/" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="0" style="margin:0px">https://www.uantwerpen.be/en/conferences/beyond-the-genome/registration/</a><span style="margin:0px"> </span> </span></p>
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<span lang="en-US" style="margin:0px">We have confirmed the following speakers:<span style="margin:0px"> </span></span></p>
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<b><span lang="en-US" style="margin:0px">Mahsa Shabani</span></b><span lang="en-US" style="margin:0px"><span style="margin:0px"> </span>(UGent)</span></p>
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<b><span lang="en-US" style="margin:0px">Liis Leitsalu</span></b><span lang="en-US" style="margin:0px"><span style="margin:0px"> </span>(University Of Tartu/Estonian Biobank)</span></p>
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<b><span lang="en-US" style="margin:0px">Massimiliano Simons</span></b><span lang="en-US" style="margin:0px"><span style="margin:0px"> </span>(Maastricht University)</span></p>
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<b><span lang="en-US" style="margin:0px">Sebastian Porsdam Mann</span></b><span lang="en-US" style="margin:0px"><span style="margin:0px"> </span>(University of Oxford) <span style="margin:0px"> </span></span></p>
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<b><span lang="en-US" style="margin:0px">Juan Antonio Vizcaino</span></b><span lang="en-US" style="margin:0px"><span style="margin:0px"> </span>(EMBL-EBI) <span style="margin:0px"> </span></span></p>
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<span lang="en-US" style="margin:0px">More information:<span style="margin:0px"> </span><a href="http://www.uantwerpen.be/beyondthegenome" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="1" style="margin:0px">www.uantwerpen.be/beyondthegenome</a><span style="margin:0px"> </span> </span></p>
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<span lang="en-US" style="margin:0px">The Beyond the Genome symposium is the kickstarter for the FWO project "Beyond the Genome: Ethical Aspects of Large Cohort Studies".</span></p>
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<span lang="en-US" style="margin:0px">On behalf of the organizing committee<span style="margin:0px"> </span></span></p>
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<span lang="en-US" style="margin:0px">-Kristien Hens, Department of Philosophy, Antwerp University </span></p>
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<span lang="en-US" style="margin:0px">(<a href="https://www.uantwerpen.be/en/staff/kristien-hens/" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="2" style="margin:0px">https://www.uantwerpen.be/en/staff/kristien-hens/</a>)<span style="margin:0px"> </span> </span></p>
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<span lang="en-US" style="margin:0px">-Dirk Valkenborg, Data Science Institute, Hasselt University</span></p>
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<span lang="en-US" style="margin:0px">(<a href="https://www.uhasselt.be/nl/wie-is-wie/dirk-valkenborg" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="3" style="margin:0px">https://www.uhasselt.be/nl/wie-is-wie/dirk-valkenborg</a>)<span style="margin:0px"> </span> </span></p>
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<span lang="en-US" style="margin:0px">-Gökhan Ertaylan, Data Scientist, Flemish Institute for Technological Development (VITO) </span></p>
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<span lang="en-US" style="margin:0px">(<a href="https://vito.be/en/employee/g%C3%B6khan-ertaylan" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="4" style="margin:0px">https://vito.be/en/employee/gökhan-ertaylan</a>)<span style="margin:0px"> </span> </span></p>
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<span lang="en-US" style="margin:0px">-Kurt Boonen, Center for Proteomics, Antwerp University </span></p>
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<span lang="en-US" style="margin:0px">(<a href="https://www.uantwerpen.be/en/staff/kurt-boonen/" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="5" style="margin:0px">https://www.uantwerpen.be/en/staff/kurt-boonen/</a>)<span style="margin:0px"> </span> </span></p>
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<span lang="en-US" style="margin:0px">-Frédérique Villenne, Data Science Institute,
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Hasselt University</span><span style="margin:0px"></span></span></p>
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<span lang="en-US" style="margin:0px">(<a href="https://www.uhasselt.be/nl/wie-is-wie/frederique-vilenne" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="6" style="margin:0px">https://www.uhasselt.be/nl/wie-is-wie/frederique-vilenne</a>)<span style="margin:0px"> </span> </span></p>
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-Daan Kenis, Department of Philosophy, Antwerp University<span style="margin:0px"> </span></p>
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(<a href="https://www.uantwerpen.be/nl/personeel/daan-kenis_22654/" target="_blank" rel="noopener noreferrer" data-auth="NotApplicable" data-safelink="true" data-linkindex="7" style="margin:0px">https://www.uantwerpen.be/nl/personeel/daan-kenis_22654/</a>)
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